Cover Note for Child-Friendly Privacy Summary
Last Updated: 11 September 2025
This child-friendly privacy summary has been written to help young people understand how Ready Steady Go Hello (Charity No. 1203528) uses their information.
It explains, in clear and simple language:
This summary is not a legal document. It is a plain-language guide to support understanding.
For full details, including our legal obligations and how we meet UK data protection law, please read our Privacy Notice. The Privacy Notice applies to all our services.
This child-friendly privacy summary has been written to help young people understand how Ready Steady Go Hello (Charity No. 1203528) uses their information.
It explains, in clear and simple language:
- Who we are
- What information we ask for
- Why we use it
- Who sees it
- How we keep it safe
- That taking part is always a choice
- The rights children and young people have
This summary is not a legal document. It is a plain-language guide to support understanding.
For full details, including our legal obligations and how we meet UK data protection law, please read our Privacy Notice. The Privacy Notice applies to all our services.
Children's Privacy Summary
Children's Privacy Summary v1.1
Last Updated: 11 September 2025
Who We Are
We are Ready Steady Go Hello (Charity No. 1203528). We run this programme to help young people move from children’s to adult healthcare.
What Information We Ask For
When you use our forms, we ask about things like:
We also use a hospital number (not your name) to help keep your information safe.
Why We Use Your Information
We use your answers so your hospital team can understand your needs and give you better care.
Who Sees Your Information
Keeping It Safe
We work hard to keep your information safe, using secure systems and checks.
Your Choice
You don’t have to take part. At the start of each form we provide some information about how your information will be used by the healthcare team, and we ask:
“Do you agree?”
You can change your mind at any time. Just tell your healthcare team.
Your Rights
You can ask to see your information, change it, or ask for it to be deleted. If you are not happy with how your information is used, you (or your family) can also make a complaint to the Information Commissioner’s Office (ICO) – the UK’s information watchdog.
Last Updated: 11 September 2025
Who We Are
We are Ready Steady Go Hello (Charity No. 1203528). We run this programme to help young people move from children’s to adult healthcare.
What Information We Ask For
When you use our forms, we ask about things like:
- What you know about your condition and treatment
- How confident you feel about asking questions
- How you look after your health and lifestyle
- School, leaving school, and daily life
- Free time, friends, and using transport
- Your feelings and emotions
- What you think of this programme
We also use a hospital number (not your name) to help keep your information safe.
Why We Use Your Information
We use your answers so your hospital team can understand your needs and give you better care.
Who Sees Your Information
- Your healthcare team
- Our trusted technology partner (they run the secure system, but don’t use your answers for themselves)
Keeping It Safe
We work hard to keep your information safe, using secure systems and checks.
Your Choice
You don’t have to take part. At the start of each form we provide some information about how your information will be used by the healthcare team, and we ask:
“Do you agree?”
- If you say Yes, your answers are saved and shared with your healthcare team.
- If you say No, nothing is saved.
You can change your mind at any time. Just tell your healthcare team.
Your Rights
You can ask to see your information, change it, or ask for it to be deleted. If you are not happy with how your information is used, you (or your family) can also make a complaint to the Information Commissioner’s Office (ICO) – the UK’s information watchdog.
Privacy Policy
Privacy Policy v1.1
Last Updated: 11 September 2025
Who We Are
Ready Steady Go Hello (Charity No. 1203528) (“we”, “our”, “us”) is the data controller responsible for the personal data collected through this service.
Our Data Protection Officer (DPO) is Alun Williams. You can contact him with any questions about how we handle your data at:
What Personal Data We Collect
We collect and process the following categories of personal data:
Because some of this information relates to your health, it is treated as special category data under UK data protection law.
We collect this information directly from you when you use our service.
Why We Use Your Personal Data & Legal Basis
We process your personal data so that we can provide the Ready Steady Go Hello service to you and your healthcare provider.
Our legal basis for this is:
When forms are submitted, the system requires you to select “Yes” to consent before proceeding. This consent is recorded and timestamped in the raw data, linked only to your pseudonymised hospital number. If consent is not given, no data is stored.
Sharing Your Information
We share your personal data in the following ways:
We do not transfer your information outside the UK or EEA.
Data Retention
We only keep your personal data for as long as it is needed to provide the service and support your healthcare.
Note: We are currently reviewing our data retention policy to ensure it meets both NHS and UK GDPR requirements. This section will be updated once a formal decision has been made.
Your Rights
Under UK data protection law, you have the right to:
If you wish to exercise these rights, please contact your healthcare provider, who can contact us at [email protected] or our DPO at [email protected].
You also have the right to complain to the Information Commissioner’s Office (ICO) if you are unhappy with how we use your data:
Security of Your Information
We take the security of your information seriously. Measures in place include:
Cookies and Tracking
We do not currently use cookies, analytics, or tracking tools as part of our service.
Updates to This Notice
We may update this notice from time to time. The most recent version will always be available on our website.
Last Updated: 11 September 2025
Who We Are
Ready Steady Go Hello (Charity No. 1203528) (“we”, “our”, “us”) is the data controller responsible for the personal data collected through this service.
- Contact email: [email protected]
- Registered address: 125 Bouverie Avenue South, Salisbury, SP2 8EA, United Kingdom
- Information Commissioner’s Office (ICO) registration: ZB981473
Our Data Protection Officer (DPO) is Alun Williams. You can contact him with any questions about how we handle your data at:
- Email: [email protected] or [email protected]
What Personal Data We Collect
We collect and process the following categories of personal data:
- Hospital number (pseudonymised identifier)
- User-inputted hospital information
- Health-related responses provided through our programme, including:
- Knowledge – What I Know (understanding of condition and treatments)
- Self Advocacy – Speaking Up For Yourself (ability to ask questions, confidentiality)
- Health and Lifestyle – Looking After Myself (exercise, alcohol, food choices)
- Daily Living, School, and Leaving School (managing day-to-day activities and transitions)
- Leisure – My Free Time (public transport, friendships, social activities)
- Managing Emotions – My Feelings (confidence, wellbeing, dealing with challenges)
- Programme feedback (views on the Ready Steady Go Hello service)
Because some of this information relates to your health, it is treated as special category data under UK data protection law.
We collect this information directly from you when you use our service.
Why We Use Your Personal Data & Legal Basis
We process your personal data so that we can provide the Ready Steady Go Hello service to you and your healthcare provider.
Our legal basis for this is:
- Consent — we only process your information when you (or your parent/guardian, if applicable) agree to provide it to us.
When forms are submitted, the system requires you to select “Yes” to consent before proceeding. This consent is recorded and timestamped in the raw data, linked only to your pseudonymised hospital number. If consent is not given, no data is stored.
Sharing Your Information
We share your personal data in the following ways:
- With Gather IT Limited, our technology provider, who hosts the secure online dashboard/portal used to access the information. Gather IT acts as a data processor on our behalf.
- With your healthcare providers, who may act as separate data controllers when they use the information for your care.
We do not transfer your information outside the UK or EEA.
Data Retention
We only keep your personal data for as long as it is needed to provide the service and support your healthcare.
Note: We are currently reviewing our data retention policy to ensure it meets both NHS and UK GDPR requirements. This section will be updated once a formal decision has been made.
Your Rights
Under UK data protection law, you have the right to:
- Access your personal data
- Ask us to correct mistakes
- Ask us to delete your data
- Restrict or object to how we use it
- Request your data in a portable format
- Withdraw consent at any time
If you wish to exercise these rights, please contact your healthcare provider, who can contact us at [email protected] or our DPO at [email protected].
You also have the right to complain to the Information Commissioner’s Office (ICO) if you are unhappy with how we use your data:
- Website: https://ico.org.uk/make-a-complaint
- Telephone: 0303 123 1113
- ICO registration number: ZB981473
Security of Your Information
We take the security of your information seriously. Measures in place include:
- Hosting by a provider with a Cyber Essentials Certificate
- Internal and external penetration testing
- Code reviews (internal and third-party)
- Multi-Factor Authentication on privileged accounts
- Defined logging and reporting requirements
- Load testing to ensure system resilience
Cookies and Tracking
We do not currently use cookies, analytics, or tracking tools as part of our service.
Updates to This Notice
We may update this notice from time to time. The most recent version will always be available on our website.
All logos and visual representations of products contained on this site are the property of Ready, Steady, Go and TIER and must not be used without prior consent to avoid potential legal action.
This website contains links to other sites. Please be aware that Ready, Steady, Go and TIER is not responsible for the privacy practices of other websites. We encourage users to be aware when they leave our site and to read the privacy statements of other websites.
This website contains links to other sites. Please be aware that Ready, Steady, Go and TIER is not responsible for the privacy practices of other websites. We encourage users to be aware when they leave our site and to read the privacy statements of other websites.
