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    • Shared Decision Making & Ask Three Questions
  • About
    • Contacts
    • Privacy Policy
  • Ready Steady Go Programme
    • Ready Steady Go
    • Easy Read
    • Hello to Children's Services
    • Hello to Adult Services
    • PEEER Project
    • PEEER Events
    • Useful Links for Young People and Adults
    • Testimonials
  • Specialities
    • Renal
    • Respiratory
    • Surgery
    • Epilepsy
    • Rheumatology
    • Haematology
  • Education
    • Recorded Study Days
      • Moving on up Together Study days
      • Ask 3 Questions Mini Symposium
      • Nephro-Urology Study Day 2022
      • Ready Steady Go Hello Study Day 2022
    • Nephro-Urology Study Day
    • 3rd Bi-Annual RSG&H Study Day
    • Moving on up Together Study Day
    • Ready Steady Go Hello Drop In Session
  • Shared Decision Making
    • Shared Decision Making & Ask Three Questions
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Useful Resources and Links

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​Providing information for parents and carers about kidney conditions in babies, children and young people.

www.infokid.org.uk

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It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research.

www.renal.org/rare-renal/homepage

Shared Decision Making

Dialysis Choices

Below you will find a useful summary of the different types of dialysis that are offered in most renal centres. This grid can be used to discuss the choices with your patients and their carers and for families to look at in their own time to help with making a decision.

​Then, use the discussion record to document these decisions by clicking on the icon to download a copy. 
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Peritoneal Dialysis at Home (PD)
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How long does it take?
​
​Every night 10-12 hours while asleep
​ ​​​​
​


Access Devices
PD Catheter

Performed by
​

​Parent / carer or young person​
(sleep may be disrupted)

Training

Several weeks of training
​Not too difficult to learn

Equipment

Machine
Sink
​
​Dialysis fluid storage

Risks/Unwanted Side Effects

Infection inside abdomen (peritonitis)

Infection or malfunction of catheter

​Dialysis fluid draining out slowly or blocked

Fluid & Dietary Requirements
​

Moderately strict 
(Ask dietician, every person is different)
​
​

Holiday
​

Yes – equipment is portable
​



Haemodialysis in Hospital (HD)

How long does it take?
​
​​3 times a week
4 hours (need to miss school)
Plus travel time ​​​​​

Access Devices
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Performed by
​

Dialysis nurses​

Training
​

None - undertaken by nurses
​


Equipment
​

In hospital

​


Risks/Unwanted Side Effects

Infection or malfunction of central line or fistula

Drop in blood pressure
​
​
Dizziness, cramps and headaches

Fluid & Dietary Requirements
​

Most strict as least dialysis time 
​(Ask dietician, every person is different)
​

Holiday
​

 Yes – arrange for dialysis in another center

Home Haemodialysis (HHD)
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How long does it take?
​

​4+ times a week
​4-5 hours, flexible timings​​​​ ​​​​

Access Devices
Picture

Performed by

​Parent / carer or young person
​

Training
​

Several weeks of training
More complex to learn

Equipment
​

Machine
Sink​
​
Dialysis fluid storage

Risks/Unwanted Side Effects

Infection or malfunction of central line or fistula

Drop in blood pressure

​​Dizziness, cramps and headaches

Fluid & Dietary Requirements
​

Moderately strict 
​(Ask dietician, every person is different)
​

Holiday
​

Yes – equipment is portable
​


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Privacy Policy
  • About
    • Contacts
    • Privacy Policy
  • Ready Steady Go Programme
    • Ready Steady Go
    • Easy Read
    • Hello to Children's Services
    • Hello to Adult Services
    • PEEER Project
    • PEEER Events
    • Useful Links for Young People and Adults
    • Testimonials
  • Specialities
    • Renal
    • Respiratory
    • Surgery
    • Epilepsy
    • Rheumatology
    • Haematology
  • Education
    • Recorded Study Days
      • Moving on up Together Study days
      • Ask 3 Questions Mini Symposium
      • Nephro-Urology Study Day 2022
      • Ready Steady Go Hello Study Day 2022
    • Nephro-Urology Study Day
    • 3rd Bi-Annual RSG&H Study Day
    • Moving on up Together Study Day
    • Ready Steady Go Hello Drop In Session
  • Shared Decision Making
    • Shared Decision Making & Ask Three Questions